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Judith McKenzie

This course is about caring for and educating children (and youth) with severe to profound intellectual disability. We use the idea of 'circles' to position the child at the center of the many levels of support needed. Around the child are circles of care and education - such as the parents, family, friends, caregivers, educators, health care workers, and others such as neighbors, business owners, and community members. Each one has an important role to play in the life of a person with an intellectual disability and can be seen as a caregiver and educator. Although this course is aimed particularly at caregivers who work at a special centre or in a private home, each person in the circle of care and education plays a valuable role and will find the course useful.

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This course is about caring for and educating children (and youth) with severe to profound intellectual disability. We use the idea of 'circles' to position the child at the center of the many levels of support needed. Around the child are circles of care and education - such as the parents, family, friends, caregivers, educators, health care workers, and others such as neighbors, business owners, and community members. Each one has an important role to play in the life of a person with an intellectual disability and can be seen as a caregiver and educator. Although this course is aimed particularly at caregivers who work at a special centre or in a private home, each person in the circle of care and education plays a valuable role and will find the course useful.

The course covers topics such as intellectual disability, levels of severity of intellectual disability, and the history of intellectual disability. These inform how you can support children and youth with severe to profound intellectual disability so that they can reach their full potential and become participating members of society. We look at lifelong learning by exploring brain development, the learning process, and how to maximise the opportunities for learning.

We ask experts about how best learning can be facilitated. This includes looking at children’s learning support needs, how to go about planning activities for the learning programme, as well as how to empower multiple people who work in a team to care and educate children with severe to profound intellectual disability.

In the last week, we focus on rights, advocacy and relationships of care. Empowering and caring for caregivers themselves is a key focus of the course.

For professional development purposes, you can purchase a Verified Certificate if you wish to show evidence of your achievements, but this is optional, and you can apply for Financial Aid if you are unable to pay the certificate fee.

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What's inside

Syllabus

Who is the child with severe to profound intellectual disability?
This week focuses on understanding the child (or person) with severe to profound intellectual disability. We will look at the definitions and terms related to intellectual disability and provide an overview of the history of intellectual disability. We will also explore how the needs and rights of children with severe to profound intellectual disability can be supported, with a particular emphasis on their right to education. We invite you to comment in the discussion forum, check your knowledge in the practice quizzes and take the graded quiz at the end of the week.
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Traffic lights

Read about what's good
what should give you pause
and possible dealbreakers
Focuses on educating and caring for children with severe to profound intellectual disability, equipping caregivers and educators with essential knowledge and skills
Provides a comprehensive overview of intellectual disability, including definitions, history, and legal rights, ensuring a solid foundation for understanding the needs of children with disabilities
Emphasizes lifelong learning, promoting an inclusive approach that recognizes the learning potential of children with severe to profound intellectual disability and providing strategies for fostering their development
Covers the learning support needs of children with severe to profound intellectual disability, including how to create effective learning environments, adapt programs to meet individual needs, and empower the care team
Highlights the importance of rights, advocacy, and relationships of care, empowering caregivers and promoting the well-being of children with severe to profound intellectual disability
Stresses the need for caregiver empowerment and support, acknowledging the challenges and emotional demands of caring for children with severe to profound intellectual disability

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Reviews summary

Caring for individuals with severe intellectual disability

According to learners, this course provides a highly valuable and practical framework for understanding and supporting individuals with severe to profound intellectual disability. Many students found the focus on 'circles of care' to be a particularly useful concept. The content is seen as highly relevant for caregivers, educators, and family members, offering actionable strategies. Some learners felt certain sections could delve more deeply into specific clinical or educational techniques, suggesting it serves as an excellent introduction rather than an advanced masterclass. The emphasis on caregiver well-being and advocacy was also frequently highlighted as a significant strength.
Provides a good foundational understanding.
"This course offers a really good introduction to the topic of severe to profound intellectual disability."
"It's a solid starting point for understanding the fundamentals and historical context."
"I felt it provided a comprehensive overview of the key concepts."
"Good for someone new to the field, covering a broad range of important topics."
Highlights importance of caring for caregivers.
"The section on caring for caregivers was unexpected but incredibly important and validating."
"I appreciated the emphasis on the well-being and empowerment of caregivers themselves."
"Recognizing the needs of caregivers is crucial, and this course addresses it wonderfully."
"It was reassuring to see the course dedicating time to the support systems for caregivers."
Interviews with experts enhance learning.
"Hearing directly from experts in the field added significant value and credibility to the course content."
"The expert interviews were informative and inspiring, providing diverse perspectives."
"I appreciated the inclusion of researcher and practitioner interviews; they brought the topics to life."
"The insights from experts were very helpful in understanding the complexities of the subject matter."
Offers strategies applicable to real-world care.
"This course is highly practical and directly applicable to my work as a caregiver for individuals with severe intellectual disability."
"I learned strategies that I could immediately use in my daily interactions and planning."
"Very relevant information for anyone working in this field or caring for a family member."
"The insights provided are extremely useful for practical application in educational settings."
Presents a useful concept for care and support.
"The concept of 'circles of care' was incredibly helpful and provides a solid framework for understanding the network of support needed."
"I found the framework presented to be very valuable in organizing my thoughts around supporting individuals with severe ID."
"The structure of the course around the 'circles' is brilliant and easy to apply."
"The course content gave me a very clear understanding of the 'Circles of Care'."
Some topics could benefit from deeper exploration.
"While comprehensive, I felt some of the more complex topics could have been explored in greater depth."
"For someone with prior experience, certain modules might feel a bit basic."
"I was hoping for more specific, advanced clinical or educational strategies."
"Could use more in-depth coverage on particular interventions or assessment methods."

Activities

Be better prepared before your course. Deepen your understanding during and after it. Supplement your coursework and achieve mastery of the topics covered in Severe to Profound Intellectual Disability: Circles of Care and Education with these activities:
Community-based volunteering at an organization supporting individuals with intellectual disability
Fosters empathy, compassion, and practical experience through hands-on involvement in supporting individuals with intellectual disabilities in a community setting.
Browse courses on Community Involvement
Show steps
  • Identify a local organization that supports individuals with intellectual disability.
  • Inquire about volunteer opportunities and apply.
  • Attend training and orientation provided by the organization.
  • Participate in volunteer activities, such as assisting with daily tasks, providing companionship, or facilitating activities.
Review of basic principles of child development
Refreshes foundational knowledge of child development, essential for understanding the developmental needs and challenges of individuals with severe intellectual disability.
Browse courses on Child Development
Show steps
  • Review notes or textbooks on child development.
  • Take practice quizzes or online assessments on child development concepts.
In-Depth exploration of intellectual disability diagnoses and classifications
Solidifies the foundational understanding of the spectrum of intellectual disability diagnoses and classifications, which are critical for effective caregiving and education.
Browse courses on Intellectual Disability
Show steps
  • Review the Diagnostic and Statistical Manual of Mental Disorders (DSM-5) criteria for intellectual disability.
  • Explore different classification systems for intellectual disability, such as the American Association on Intellectual and Developmental Disabilities (AAIDD) system.
  • Read scholarly articles and research studies on the causes and prevalence of intellectual disability.
  • Attend a workshop or webinar on intellectual disability diagnosis and assessment.
Six other activities
Expand to see all activities and additional details
Show all nine activities
Exploring assistive technology for individuals with severe intellectual disability
Provides hands-on experience with assistive technologies that enhance the daily lives and learning experiences of individuals with severe intellectual disabilities.
Browse courses on Assistive Technology
Show steps
  • Research different types of assistive technology for individuals with severe intellectual disability.
  • Find tutorials or online resources on using assistive technology.
  • Practice using assistive technology with individuals with severe intellectual disability.
Discussion group
Engage in discussions with peers to enhance your understanding of intellectual disability, best practices for care and education, and advocacy for individuals with disabilities.
Browse courses on Intellectual Disability
Show steps
  • Identify a discussion group or forum related to intellectual disability
  • Participate regularly in discussions, sharing your perspectives and asking questions
  • Actively listen to others' experiences and insights
Effective communication strategies for individuals with severe intellectual disability
Enhances practical skills in using effective communication methods with individuals with severe intellectual disabilities, enabling improved engagement and understanding.
Browse courses on Communication Strategies
Show steps
  • Attend a workshop on communication strategies for individuals with severe intellectual disability.
  • Learn about different types of augmentative and alternative communication (AAC) systems.
  • Practice using AAC systems with individuals with severe intellectual disability.
Engaging with perspectives on intellectual disability in 'The Reason I Jump'
Provides valuable insights into the lived experiences and perspectives of individuals with intellectual disabilities, fostering empathy and understanding.
Show steps
  • Read 'The Reason I Jump' by Naoki Higashida.
  • Reflect on the author's experiences and insights.
  • Discuss the book with peers or a support group.
Collaborative case study analysis of challenging behaviors in intellectual disability
Develops problem-solving and collaboration skills through the analysis of real-life case studies involving challenging behaviors in individuals with intellectual disabilities.
Browse courses on Challenging Behaviors
Show steps
  • Form a study group with peers.
  • Select a case study of a challenging behavior in an individual with intellectual disability.
  • Analyze the case study and discuss potential causes and interventions.
  • Develop a plan for managing the challenging behavior.
Case Study Analysis
Undertake a case study analysis of an individual with intellectual disability to apply course concepts, assess needs, and develop an individualized support plan.
Browse courses on Intellectual Disability
Show steps
  • Gather information about the individual's history, strengths, and challenges
  • Develop a comprehensive assessment report
  • Create an individualized support plan that includes appropriate interventions and strategies

Career center

Learners who complete Severe to Profound Intellectual Disability: Circles of Care and Education will develop knowledge and skills that may be useful to these careers:
Early Childhood Special Education Teacher
Early Childhood Special Education Teachers develop and implement individualized learning programs for young learners with severe disabilities, including those with intellectual disabilities. This course can help prepare you for this role by providing a deep understanding of the unique needs of children with intellectual disabilities. By studying the history and definitions of intellectual disability, you'll gain the knowledge necessary to collaborate with parents, families, and other caregivers to support these children's learning and development.
Special Education Teacher
Special Education Teachers collaborate with students, parents, and other professionals to develop and implement individualized educational programs for students with disabilities. This course can help you gain the skills and knowledge needed to support students with severe intellectual disabilities. You'll learn how to assess learning needs, create accessible learning environments, and use effective teaching strategies.
Intellectual Disabilities Nurse
Intellectual Disabilities Nurses provide specialized care to individuals with intellectual disabilities. This course can help prepare you for this role by providing a comprehensive understanding of the medical and social issues that affect people with intellectual disabilities. You'll also learn how to work with families, caregivers, and other healthcare professionals to provide holistic and compassionate care.
Occupational Therapist
Occupational Therapists help individuals with disabilities develop and improve the skills they need to participate in everyday activities. This course can provide a foundation for this role by helping you understand the unique challenges faced by individuals with severe intellectual disabilities. You'll learn strategies for developing and implementing individualized therapy plans to promote independence and enhance quality of life.
Physical Therapist
Physical Therapists help individuals with disabilities improve their physical mobility and function. This course can provide valuable insights for this role by providing an understanding of the physical challenges faced by individuals with severe intellectual disabilities. You'll learn how to develop and implement individualized therapy plans to improve motor skills, balance, and coordination.
Speech-Language Pathologist
Speech-Language Pathologists assess and treat communication and swallowing disorders. This course can help prepare you for this role by providing a foundation in the communication challenges faced by individuals with severe intellectual disabilities. You'll learn strategies for assessing communication needs and developing individualized intervention plans to improve communication skills.
Social Worker
Social Workers provide support and guidance to individuals and families facing challenges. This course may be useful for those interested in social work with individuals with intellectual disabilities. You'll gain insights into the social and emotional needs of these individuals and learn strategies for providing support and advocacy.
Case Manager
Case Managers coordinate care and services for individuals with disabilities. This course may be helpful for those interested in case management for individuals with intellectual disabilities. You'll learn about the different services and resources available to support these individuals.
Counselor
Counselors provide guidance and support to individuals facing personal and emotional challenges. This course may be useful for counselors interested in working with individuals with intellectual disabilities. You'll gain insights into the unique challenges faced by these individuals and learn strategies for providing support and counseling.
Advocate
Advocates represent and defend the rights of individuals with disabilities. This course may be useful for those interested in advocacy for individuals with intellectual disabilities. You'll learn about the legal and ethical issues surrounding intellectual disability and gain strategies for effective advocacy.
Researcher
Researchers conduct studies to advance knowledge and understanding in various fields. This course may be useful for researchers interested in intellectual disability. You'll gain insights into the current state of research and learn strategies for conducting ethical and impactful research.
Educator
Educators teach and support students in various settings. This course may be useful for educators interested in working with students with intellectual disabilities. You'll gain insights into the unique learning needs of these students and learn strategies for creating accessible and inclusive learning environments.
Caregiver
Caregivers provide support and assistance to individuals with disabilities. This course can provide valuable insights for caregivers of individuals with severe intellectual disabilities. You'll learn about the unique needs of these individuals and gain strategies for providing compassionate and effective care.
Administrator
Administrators manage and oversee organizations and programs. This course may be useful for administrators of organizations serving individuals with intellectual disabilities. You'll gain insights into the unique challenges and needs of these organizations.
Policymaker
Policymakers develop and implement policies that impact the lives of individuals with disabilities. This course may be useful for policymakers interested in intellectual disability policy. You'll gain insights into the current policy landscape and learn strategies for developing and advocating for policies that promote the rights and well-being of individuals with intellectual disabilities.

Reading list

We've selected seven books that we think will supplement your learning. Use these to develop background knowledge, enrich your coursework, and gain a deeper understanding of the topics covered in Severe to Profound Intellectual Disability: Circles of Care and Education.
Provides a practical guide to educating children with severe intellectual disability. It covers a range of topics, including assessment, curriculum planning, and behavior management.
Examines the relationship between disability and social policy in a global context. It provides an overview of the different ways that disability is conceptualized and addressed in different countries.
Provides a comprehensive overview of the law as it relates to individuals with intellectual disabilities. It covers a range of topics, including education, employment, and healthcare.
This textbook provides a comprehensive overview of special education. It covers a range of topics, including the history of special education, the different types of disabilities, and the various educational approaches that are used to meet the needs of students with disabilities.
This textbook provides practical strategies for creating inclusive classrooms for students with disabilities. It covers a range of topics, including curriculum development, instruction, and assessment.
This reference tool provides a current overview of the definition, diagnosis, and classification of intellectual disability.
This textbook provides a comprehensive overview of intellectual disability across the lifespan.

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