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Living with Dementia

Impact on Individuals, Caregivers, Communities and Societies

Nancy Hodgson, PhD, RN, FAAN and Laura N. Gitlin, PhD

Health professionals and students, family caregivers, friends of and affected individuals, and others interested in learning about dementia and quality care will benefit from completing the course. Led by Drs. Nancy Hodgson and Laura Gitlin, participants will acquire foundational knowledge in the care of persons with Alzheimer’s Disease and other neurocognitive disorders.

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What's inside

Syllabus

About Dementia
In this module, we introduce learners to dementia. We present a socio-ecological framework for understanding the live experience of dementia and by which this course is organized. We discuss the global impact, pathophysiology, and stages of dementia.
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Impact on the Person
In this module, we focus on the impact of dementia for individuals. You will learn about common unmet needs of persons with dementia as well as the impact of core clinical features such as behavioral and psychological symptoms. Also, you will learn ways to support quality of life of a person with dementia.
Caregiving and the Home Environment
In this module, we expand our lens to consider family caregivers’ needs. You will learn the psychosocial impact of caring for a person with dementia and the role of stress. We provide examples of how to reduce stress, use the physical environment to support care tasks and well-being, and examine the potential role of technologies to improve dementia care.
Module 4: Community Level
ln this module, we examine the community level. We discuss how the interprofessional team plays a key role in providing comprehensive dementia care. Also, we examine the concept of dementia-friendly communities and provide some examples from around the world.
Module 5: Society at Large
In this module, we provide an overview of national plans and policies. We identify elements of key plans and review the impact of such plans from a global perspective. You will also have the opportunity to develop an action plan that addresses an unmet need that you identify either in your home, community, or place of work.

Good to know

Know what's good
, what to watch for
, and possible dealbreakers
Classifies signs and symptoms of dementia patients in clinical settings, which is standard in health professions
Broadly examines dementia and its impact on affected individuals and their family caregivers, which is useful for family caregivers and friends of people with dementia
Explores unmet needs of people with dementia, which is highly relevant to family caregivers and healthcare providers
Investigates community efforts to address dementia, which is critical for public health professionals and policymakers
Provides examples of national dementia plans from around the globe, which is highly relevant to public health professionals and policymakers
Taught by well-established researchers in the field of dementia care, who are recognized for their contributions to the field

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Reviews summary

Comprehensive dementia care

Learners say this course is widely regarded as informative and filled with practical insights on caring for individuals with dementia. It features engaging assignments and covers essential topics such as understanding the disease, communication strategies, and caregiver well-being. The course's expert instructors provide valuable information on the latest research and cutting-edge approaches to dementia care. Students appreciate the abundance of resources, like readings and videos, which enhance their learning experience. Overall, those who have taken this course highly recommend it to anyone interested in gaining a deeper understanding of dementia and its impact on individuals, caregivers, and communities.
Appropriate duration for the subject matter.
"I was struggling as a caregiver but now, thanks to this course, have so much information and clarity about this perplexing illness!"
"The course has truly helped me gain insights on how to manage patients with dementia."
"Thank you for the opportunity to learn many things about dementia, it is a whole new experience for me, although only by the internet."
Course helps learners make a positive difference.
"I was struggling as a caregiver but now, thanks to this course, have so much information and clarity about this perplexing illness!"
"The course has truly helped me gain insights on how to manage patients with dementia."
"Thank you for the opportunity to learn many things about dementia, it is a whole new experience for me, although only by the internet."
Access to a wealth of supportive materials.
"The course provided a comprehensive overview of dementia. I especially the list of readings and resources provided by the presenters."
"The instructors were awesome, able to cram so much useful information in such a short time span."
"Learned valuable information about Dementia care."
Knowledgeable instructors share their expertise.
"The instructors were awesome, able to cram so much useful information in such a short time span."
"The course has truly helped me gain insights on how to manage patients with dementia."
"Learned valuable information about Dementia care."
Links to some articles only provide abstracts.
"The course doesn't seem up-to-date."
Some materials may not be up-to-date.
"The course doesn't seem up-to-date."

Activities

Coming soon We're preparing activities for Living with Dementia: Impact on Individuals, Caregivers, Communities and Societies. These are activities you can do either before, during, or after a course.

Career center

Learners who complete Living with Dementia: Impact on Individuals, Caregivers, Communities and Societies will develop knowledge and skills that may be useful to these careers:
Dementia Caregiver
Dementia Caregivers provide care and support to individuals with dementia. By taking this course, Dementia Caregivers can gain a comprehensive understanding of the physical, cognitive, and emotional changes associated with dementia. They can learn about best practices in dementia care and develop the skills to provide compassionate and effective care to individuals with dementia. This course can help Dementia Caregivers improve the quality of life for individuals with dementia and their families.
Neuropsychologist
Neuropsychologists assess and treat cognitive and behavioral impairments caused by neurological disorders, including dementia. By taking this course, Neuropsychologists can enhance their knowledge of the neuropsychological manifestations of dementia, as well as the role of neuropsychological assessment in diagnosis, treatment planning, and monitoring. They can learn about the latest advances in neuropsychological research and apply this knowledge to provide comprehensive neuropsychological services to individuals with dementia.
Research Scientist
Research Scientists conduct scientific investigations to advance knowledge in a particular field. By taking this course, Research Scientists can gain an overview of the current state of dementia research and identify areas where further investigation is needed. They can learn about the different research methods used in dementia research and develop the skills to design and conduct their own studies. This knowledge can help Research Scientists contribute to the development of new treatments and interventions for dementia.
Geriatric Psychiatrist
Geriatric Psychiatrists specialize in the mental health of older adults, including the assessment and treatment of dementia. By taking this course, Geriatric Psychiatrists can strengthen their understanding of the neuropsychiatric symptoms associated with dementia, as well as the psychological impact on individuals and their families. They can learn about evidence-based pharmacological and non-pharmacological interventions to manage these symptoms and improve the overall well-being of persons with dementia.
Dementia Care Manager
Dementia Care Managers are healthcare professionals who specialize in providing comprehensive care and support to individuals with dementia and their families. By taking this course, Dementia Care Managers can build a strong foundation in the assessment, planning, and implementation of dementia care. They can learn about the unique needs of individuals with dementia and develop strategies to support their well-being and independence. Furthermore, the course provides practical guidance on navigating the healthcare system and accessing resources for those affected by dementia.
Geriatric Nurse
Geriatric Nurses provide specialized care to older adults, including those with dementia. By taking this course, Geriatric Nurses can gain a comprehensive understanding of the physical, cognitive, and emotional changes associated with dementia. They can learn about best practices for assessing, planning, and implementing nursing interventions to promote the comfort, safety, and well-being of individuals with dementia.
Social Worker
Social Workers support individuals and families facing social and emotional challenges, including those related to aging and dementia. By taking this course, Social Workers can gain a deeper understanding of the biopsychosocial impact of dementia on individuals and caregivers. They can use this knowledge to conduct assessments, provide counseling, connect clients to resources, and advocate for policies that support persons with dementia.
Speech-Language Pathologist
Speech-Language Pathologists specialize in the assessment and treatment of communication and swallowing disorders. By taking this course, Speech-Language Pathologists can gain a deeper understanding of the communication challenges faced by individuals with dementia. They can learn about the various types of dementia, their impact on language and communication, and effective strategies for assessment and intervention. This knowledge can help Speech-Language Pathologists provide tailored therapy to improve communication, maintain cognitive function, and enhance the quality of life for individuals with dementia.
Occupational Therapist
Occupational Therapists help individuals recover or improve their ability to perform daily activities. By understanding the cognitive and functional challenges faced by individuals with dementia, Occupational Therapists can develop individualized treatment plans to promote engagement in meaningful activities, improve cognitive function, and maximize independence. This course can provide a solid foundation in the assessment and treatment of individuals with dementia, enabling Occupational Therapists to effectively address their unique needs.
Policy Analyst
Policy Analysts research, analyze, and evaluate public policies. By taking this course, Policy Analysts can gain an understanding of the social, economic, and healthcare policies that affect individuals with dementia and their families. They can learn how to conduct policy analysis, develop policy recommendations, and advocate for policies that improve the lives of those affected by dementia. This course can also help Policy Analysts understand the role of research in informing policy decisions.
Nonprofit Manager
Nonprofit Managers lead and manage nonprofit organizations, including those that provide services to individuals with dementia. By taking this course, Nonprofit Managers can gain an understanding of the unique needs and challenges faced by individuals with dementia and their families. They can learn about best practices in nonprofit management and develop strategies to effectively lead organizations that provide dementia care and support services.
Healthcare Administrator
Healthcare Administrators manage the operations of healthcare organizations, including hospitals, clinics, and nursing homes. By taking this course, Healthcare Administrators can gain an understanding of the challenges faced by individuals with dementia in healthcare settings. They can learn about the latest trends in dementia care and develop strategies to improve the quality of care for persons with dementia. This course can help Healthcare Administrators create dementia-friendly environments and ensure that individuals with dementia receive the care and support they need.
Fundraising Professional
Fundraising Professionals raise funds to support nonprofit organizations, including those that provide services to individuals with dementia. By taking this course, Fundraising Professionals can gain an understanding of the unique needs and challenges faced by individuals with dementia and their families. They can learn how to develop targeted fundraising campaigns that resonate with potential donors and raise funds to support dementia research, care, and support services.
Health Educator
Health Educators specialize in educating individuals and communities about health topics. By using the knowledge gained in this course, a Health Educator can better understand the impact of dementia on individuals, families, and communities. This can aid them in designing and delivering educational programs that address the unique challenges faced by those affected by dementia. Additionally, the course provides insights into strategies for improving the quality of life of individuals with dementia.
Educator
Educators teach and train students in a variety of settings, including schools, colleges, and universities. By taking this course, Educators can gain an understanding of the unique needs and challenges faced by individuals with dementia and their families. They can learn about effective teaching strategies and develop lesson plans that are accessible to individuals with dementia. This knowledge can help Educators create inclusive learning environments and support students with dementia in reaching their full potential.

Reading list

We've selected six books that we think will supplement your learning. Use these to develop background knowledge, enrich your coursework, and gain a deeper understanding of the topics covered in Living with Dementia: Impact on Individuals, Caregivers, Communities and Societies.
Classic guide to caring for someone with dementia, providing practical advice and support for families.
Provides an overview of the science of exercise and its benefits for the brain, including its role in preventing and treating dementia.

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