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Mind of the Universe - Genetic Privacy

should we be concerned?

Should all our genetic information be made public in order to eradicate genetic diseases from this world? Who owns your genetic data once it becomes publicly accessible? What is your responsibility to family members when you know more about genetic diseases than they do? Who decides what kind of genetic information is relevant to a person? And what does genetic privacy mean to you? In this challenge with Robert Zwijnenberg (Professor in Art and Science Interactions) you will critically reflect upon the issue of genetic privacy. You will dive into the ethical questions that come up with the disclosure of genetic data in biobanks and through genetic tests. This course encourages you to think about the cultural, philosophical and political tensions present in the debate around genetic privacy. You are invited to identify and listen to the viewpoints and values provided by the different stakeholders that shape this debate: corporations, researchers, consumers and patients. Furthermore, you will go off the beaten track by exploring the issue from the unique perspective of art and culture. After a lot of thinking, supplementing, deleting and adjusting, you will be asked to share a recommendation on how to regulate practices of disclosing genetic information, while taking into consideration the concept of genetic privacy. Your advice could serve as an eye-opener for policy makers! This online learning experience is a spin-off of The Mind of the Universe documentary series created by the Dutch broadcasting company VPRO and professor Robbert Dijkgraaf, Princeton University. A number of universities in the Netherlands have used the open source material of the documentary series as a starting point to create similar experiences.

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Universiteit Leiden

Rating 3.3 based on 3 ratings
Length 6 weeks
Effort 5 weeks of study, 2-3 hours/ week
Starts Jul 6 (4 days ago)
Cost $49
From Universiteit Leiden via Coursera
Instructors Lotte Pet, Robert Zwijnenberg
Download Videos On all desktop and mobile devices
Language English
Subjects Science Art & Design Humanities
Tags Life Sciences Biology Arts And Humanities Philosophy Basic Science

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What people are saying

According to other learners, here's what you need to know

too bad because in one review

Too bad because it's a fascinating subject.

genetic data privacy in one review

The only useful part for me was the peer discussion and seeing the opinions of other students.It is more effective to find a good science-journalism article on the topic of genetic data privacy, rather than to do this course.

good science-journalism article in one review

only useful part in one review

well laid out in one review

Great instructor and the course is well laid out.

way too short in one review

Way too short.

Careers

An overview of related careers and their average salaries in the US. Bars indicate income percentile.

HIPAA Privacy Specialist $73k

Genetic Technologist $76k

IT Auditor, Security and Privacy $80k

Privacy Specialist $82k

Privacy Specialist l $82k

Privacy Compliance Auditor $84k

System Privacy Officer $88k

Business PM Privacy $95k

Privacy Official $105k

Android Engineer - Privacy $112k

Privacy and Compliance Counsel $144k

Privacy Researcher $191k

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Coursera

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Universiteit Leiden

Rating 3.3 based on 3 ratings
Length 6 weeks
Effort 5 weeks of study, 2-3 hours/ week
Starts Jul 6 (4 days ago)
Cost $49
From Universiteit Leiden via Coursera
Instructors Lotte Pet, Robert Zwijnenberg
Download Videos On all desktop and mobile devices
Language English
Subjects Science Art & Design Humanities
Tags Life Sciences Biology Arts And Humanities Philosophy Basic Science

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