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Regina Fink, Kelly Arora, Amos Bailey, Maurice Scott, and Nancy Robertson

In this course, you’ll learn how serious and life-threatening illnesses often affect emotional and spiritual well-being. Illnesses can increase stress as patients and families learn to live with a “new normal” that may often focus on illness. You’ll learn how to tell when normal sadness (or grief) becomes something more serious and needs to be addressed. People with serious illnesses also have social concerns as their family, friends and community support system becomes stretched, and sometimes fails. We’ll talk about resources and skills you can use to help support patients and families. You’ll learn about advance care planning, that includes shared decision-making, setting goals of care, and writing down plans for care.

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What's inside

Syllabus

Introduction to Common Psycho-Social-Spiritual Concerns
In this course, you’ll learn how serious and life-threatening illnesses can affect emotional and spiritual well-being and increase stress on the patient's support network. We’ll talk about resources and skills you can use to help support patients and families. You’ll also learn about advance care planning, which includes shared decision-making, setting goals of care, and writing down plans for care.
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How Sad Is Too Sad?
In this module, you will learn how to determine if someone is experiencing normal grief about losses with serious illness. You will also learn when feeling sad becomes a more serious problem, like depression, demoralization, or the desire to die. You’ll also learn how caregivers also grieve.
Anxiety and Coping
Providing support and care in the last days of life is important. We only have one chance to provide excellent care for this person. Patients and families often feel afraid and overwhelmed. You can help ease suffering when everyday stress becomes unmanageable anxiety. You can also help patients and families understand the dying process; express their preferences for care; manage common symptoms, and provides practical, emotional, spiritual and social support. You can help make serious illness and the last days of life positive and meaningful experiences.
Easing Spiritual Distress
In this lesson, we’ll talk about the difference between spirituality and religion. Then you’ll learn skills for respectful spiritual conversations with patients and family members.
Advocating Advance Care Planning, Shared Decision Making, Goals of Care, and Family Meetings: “We Cannot Direct the Wind But We Can Adjust the Sails.”
In this lesson, we will talk about a very important topic that concerns each and every one of us. Advance care planning, shared decision making, goals of care, advocating for those we love and family conversations are central topics we all will run into eventually. What kind of care would we want if we could not speak for ourselves? Who do we want to stand up for us and speak for what we want if we can’t do it ourselves? What are our values and beliefs, what gives us joy, what do we want when time on this earth is limited? Using these principles as the guiding light, goals of care emerge and along with them preferences for treatment. We will look at ways to help facilitate the identification of these goals of care as well as how to help caregivers understand and support their loved ones wishes and desires.

Good to know

Know what's good
, what to watch for
, and possible dealbreakers
Well-suited for social and healthcare professionals helping individuals facing life-threatening illness
Covers topics highly relevant to social work, nursing, and medical practice
Provides a practical foundation for supporting patients and families dealing with serious illnesses
Taught by experienced instructors with expertise in palliative care and end-of-life care
Covers advanced care planning and shared decision-making, crucial topics in end-of-life care

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Reviews summary

Palliative care psychology and spirit

Learners say this outstanding course provides a foundational understanding of the psychosocial and spiritual aspects of palliative care. The resources are said to be great and easy to follow. Students have enjoyed the engaging lectures and examples and found that the instructors show empathy and kindness. Overall, students highly recommend this course to those looking to support patients at the end of life.
The course resources were considered to be of high quality.
"I found this course incredibly informative, easy to follow, and full of great recources"
"depth of professional competence from the videos and the vast array of reference materials"
The instructors were described as empathetic and kind.
"Examples were clear and supported learning."
"the suffering that both the patient and their loved ones endure at end of life and to help ease that suffering through good communication, showing empathy, compassion and kindness."
Students appreciated the foundational understanding gained about palliative care.
"Provides great foundational understanding"
"Excellent course. Provides great foundational understanding"
Students found the learning experience to be outstanding.
"Outstanding."
"Excellent and engaging course"
"I really enjoy this course."
Students highly recommend this course.
"I'd highly recommend this to anyone interested in becoming better at supporting others in end of life settings."
"I highly recommend this course to both professional practitioners and non-professional caregivers."

Activities

Be better prepared before your course. Deepen your understanding during and after it. Supplement your coursework and achieve mastery of the topics covered in Psychosocial and Spiritual Aspects of Palliative Care with these activities:
Review commonly experienced psychosocial concerns in end of life care
This exercise will help you recall the psychosocial concerns that commonly arise in end of life care, which will better prepare you for the material in the lectures.
Show steps
  • Read over the course syllabus and make a list of psychosocial concerns that are likely to arise in end of life care.
  • Review your existing notes, books, or online resources on this topic.
  • Discuss with a classmate or colleague the psychosocial concerns that you have identified.
Practice identifying normal grief vs. complicated grief
This activity will help you develop the skills needed to identify normal grief and complicated grief, which will improve your ability to support patients and families in end of life care.
Show steps
  • Review the different criteria for normal grief and complicated grief.
  • Complete practice exercises that require you to identify normal grief vs. complicated grief.
  • Discuss your findings with a classmate or colleague.
Learn about spiritual distress in end of life care
This activity will help you understand spiritual distress and how to support patients and families in end of life care.
Show steps
  • Find and watch a video tutorial on spiritual distress in end of life care.
  • Read an article or book chapter on this topic.
  • Discuss your findings with a classmate or colleague.
Five other activities
Expand to see all activities and additional details
Show all eight activities
Develop an advance care plan
This project will help you apply the principles of advance care planning to your own life.
Show steps
  • Research advance care planning.
  • Identify your values and goals for end of life care.
  • Complete an advance directive.
  • Share your advance care plan with your loved ones and healthcare providers.
Read 'Being Mortal' by Atul Gawande
This book provides a comprehensive overview of end of life care, and will help you to better understand the challenges and opportunities that arise in this field.
View Being Mortal on Amazon
Show steps
  • Purchase or borrow a copy of 'Being Mortal'.
  • Read the book in its entirety.
  • Take notes on the key points and insights that you gain from the book.
Volunteer at a hospice or palliative care organization
This activity will provide you with hands-on experience in end of life care, which will deepen your understanding of the material in the course.
Show steps
  • Contact a hospice or palliative care organization and inquire about volunteer opportunities.
  • Complete the necessary training and background checks.
  • Begin volunteering on a regular basis.
Attend a workshop on end of life care
This workshop will provide you with an opportunity to learn from experts in the field of end of life care, and to network with other professionals who are working in this area.
Show steps
  • Research upcoming workshops on end of life care.
  • Register for a workshop that interests you.
  • Attend the workshop and participate actively in the discussions.
Mentor a student or colleague who is new to end of life care
This activity will give you an opportunity to share your knowledge and experience in end of life care, while also helping to support the development of a new professional in this field.
Show steps
  • Identify a student or colleague who is new to end of life care.
  • Offer to mentor them and provide them with guidance and support.
  • Meet with your mentee regularly to discuss their progress and challenges.

Career center

Learners who complete Psychosocial and Spiritual Aspects of Palliative Care will develop knowledge and skills that may be useful to these careers:
Hospice Social Worker
Hospice social workers provide psychosocial support to terminally ill patients and their families. This course can be useful to hospice social workers as it provides an in-depth understanding of the emotional and spiritual challenges that patients and families face during serious illness. The course also covers topics such as advance care planning, shared decision-making, and coping with grief and loss, all of which are important skills for hospice social workers to have.
Palliative Care Nurse
Palliative care nurses provide care to patients with serious illnesses, with a focus on improving their quality of life. This course can be useful to palliative care nurses as it provides an in-depth understanding of the emotional and spiritual needs of patients with serious illnesses. The course also covers topics such as pain management, symptom management, and communication with patients and families, all of which are important skills for palliative care nurses to have.
Chaplain
Chaplains provide spiritual support to patients and families in hospitals, hospices, and other healthcare settings. This course can be useful to chaplains as it provides an in-depth understanding of the spiritual needs of patients and families during serious illness. The course also covers topics such as interfaith dialogue, grief and loss counseling, and ethical issues in healthcare, all of which are important skills for chaplains to have.
Grief Counselor
Grief counselors help people to cope with the loss of a loved one. This course can be useful to grief counselors as it provides an in-depth understanding of the grieving process. The course also covers topics such as grief counseling techniques, self-care for grief counselors, and ethical issues in grief counseling, all of which are important skills for grief counselors to have.
Social Worker
Social workers provide social and emotional support to people in a variety of settings, including hospitals, schools, and mental health clinics. This course may be useful to social workers as it provides an in-depth understanding of the emotional and social challenges that people face during serious illness. The course also covers topics such as crisis intervention, case management, and resource utilization, all of which are important skills for social workers to have.
Marriage and Family Therapist
Marriage and family therapists help couples and families to improve their relationships. This course may be useful to marriage and family therapists as it provides an in-depth understanding of the emotional and relational challenges that couples and families face during serious illness. The course also covers topics such as communication skills, conflict resolution, and family dynamics, all of which are important skills for marriage and family therapists to have.
Psychologist
Psychologists provide psychological assessment, diagnosis, and treatment to people with mental health disorders. This course may be useful to psychologists as it provides an in-depth understanding of the psychological challenges that people face during serious illness. The course also covers topics such as psychological assessment, cognitive-behavioral therapy, and psychopharmacology, all of which are important skills for psychologists to have.
Psychiatrist
Psychiatrists are medical doctors who specialize in the diagnosis and treatment of mental health disorders. This course may be useful to psychiatrists as it provides an in-depth understanding of the psychiatric challenges that people face during serious illness. The course also covers topics such as psychopharmacology, psychotherapy, and brain imaging, all of which are important skills for psychiatrists to have.
Physician Assistant
Physician assistants provide medical care to patients under the supervision of a physician. This course may be useful to physician assistants as it provides an in-depth understanding of the medical and psychosocial challenges that patients face during serious illness. The course also covers topics such as physical examination, diagnosis, and treatment, all of which are important skills for physician assistants to have.
Registered Nurse
Registered nurses provide nursing care to patients in a variety of settings, including hospitals, clinics, and homes. This course may be useful to registered nurses as it provides an in-depth understanding of the nursing care needs of patients with serious illnesses. The course also covers topics such as pain management, symptom management, and patient education, all of which are important skills for registered nurses to have.
Certified Nursing Assistant
Certified nursing assistants provide basic nursing care to patients in a variety of settings, including hospitals, clinics, and homes. This course may be useful to certified nursing assistants as it provides an in-depth understanding of the basic nursing care needs of patients with serious illnesses. The course also covers topics such as bathing, dressing, and feeding, all of which are important skills for certified nursing assistants to have.
Medical Assistant
Medical assistants perform a variety of administrative and clinical tasks in a variety of healthcare settings, including hospitals, clinics, and doctors' offices. This course may be useful to medical assistants as it provides an in-depth understanding of the administrative and clinical tasks that are involved in the care of patients with serious illnesses. The course also covers topics such as medical terminology, medical insurance, and patient billing, all of which are important skills for medical assistants to have.
Patient Care Technician
Patient care technicians provide basic patient care under the supervision of a nurse or doctor. This course may be useful to patient care technicians as it provides an in-depth understanding of the basic patient care needs of patients with serious illnesses. The course also covers topics such as vital signs monitoring, medication administration, and wound care, all of which are important skills for patient care technicians to have.
Home Health Aide
Home health aides provide basic care to patients in their homes. This course may be useful to home health aides as it provides an in-depth understanding of the basic care needs of patients with serious illnesses. The course also covers topics such as bathing, dressing, and feeding, all of which are important skills for home health aides to have.
Direct Support Professional
Direct support professionals provide support to people with disabilities in a variety of settings, including homes, schools, and workplaces. This course may be useful to direct support professionals as it provides an in-depth understanding of the psychosocial challenges that people with disabilities face during serious illness. The course also covers topics such as communication skills, behavior management, and crisis intervention, all of which are important skills for direct support professionals to have.

Reading list

We've selected nine books that we think will supplement your learning. Use these to develop background knowledge, enrich your coursework, and gain a deeper understanding of the topics covered in Psychosocial and Spiritual Aspects of Palliative Care.
This foundational work in the field of death and dying offers the renowned Kübler-Ross model of grief, providing insights into the psychological stages people go through when facing mortality.
This significant work examines the connection between mindfulness and psychotherapy, integrating Buddhist principles and Western psychology to enhance therapeutic practices.
This gentle and soothing book encourages readers to discover peace, compassion, and insight by applying Buddhist teachings in daily life.
Considered the classic in the field, this practical, how-to handbook covers symptom control, pain and symptom management, ethical issues, and more.
This prestigious handbook represents the most significant advance in palliative care reference material. It emphasizes the role of supportive and palliative care, along with compassion and care.
This accessible guidebook provides real-world advice, tools, and resources to help individuals prepare their minds and hearts for the end of life.
This award-winning biography offers insights into the fascinating life of Jogesh Chunder Dutt, well known in India and America for his philosophical and religious writings.

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