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Faster Together, Enhancing the Recruitment of Marginalized Communities in Clinical Trials

Margo Michaels, MPH, Consuelo Wilkins, M.D., M.S.C.I., Claudia Barajas, BA, Natalie Dilts, MPH, Stephanie A. Mayers, MEd, Mary Stroud, RN, Jasmine Bell, MPH, Yvonne Joosten, MPH, Jabári S. Ichimura, BS, and Tiffany L. Israel, MSSW

This course aims to teach people how to enhance the recruitment of racial and ethnic minorities in clinical trials. Key topics include the importance of diversity in clinical trials, barriers and facilitators to participation in clinical research, community engagement, effective communication, educating about clinical trials, provider outreach, effective prescreening and enrollment, person-centered consent, and retention. Anyone with the potential to recruit can benefit from this course, whether working in a clinical setting or in the community.

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This course aims to teach people how to enhance the recruitment of racial and ethnic minorities in clinical trials. Key topics include the importance of diversity in clinical trials, barriers and facilitators to participation in clinical research, community engagement, effective communication, educating about clinical trials, provider outreach, effective prescreening and enrollment, person-centered consent, and retention. Anyone with the potential to recruit can benefit from this course, whether working in a clinical setting or in the community.

The course is split into 8 weeks. You may work at your own pace and finish the course faster, if you would like. We encourage you to take the quizzes to help you learn the material. The course is free to enroll and take. You will be offered the option of purchasing a certificate of completion, which you will receive if you successfully complete the course requirements. This can be an excellent way of staying motivated! Financial aid is also available.

Acknowledgments:

We would like to acknowledge the following members from the Center for Knowledge Management at Vanderbilt University Medical Center for their expertise and ongoing insightful contribution in the development and implementation of the course: Sheila Kusnoor, PhD, Elizabeth Frakes, MSIS, Helen Naylor, MS, Mallory Blasingame, MA, Taneya Koonce, MSLS, MPH, and Nunzia Bettinsoli Giuse, MD, MLS.

We would also like to acknowledge ArtMagic Labs, particularly Casey Culver, John Martinez, and Robert Eva, for their outstanding work in filming and editing the videos for the course.

The Recruitment Innovation Center and members of the Meharry-Vanderbilt Alliance lead the efforts behind the Faster Together project. Together they have led the development of this training.

This work is supported by the National Center for Advancing Translational Sciences, National Institutes of Health, under the award number U24TR001579.

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What's inside

Syllabus

Module 1: Understanding the Need to Increase Minority Recruitment in Clinical Trials
This lesson describes the need to include racial and ethnic minorities in clinical trials. We review how low participation of minorities in research affects health care. We discuss the lasting impact of past research abuses on people’s thoughts about research. Finally, we cover barriers to research participation and how to overcome them.
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Module 2: Key Principles of Community Engagement
This lesson begins by describing the need to look at one’s own biases. Next, we review effective ways to engage with the community to make recruitment easier. We discuss the steps needed to make community partnerships. Finally, we show how community partnerships can increase recruitment for minority populations.
Module 3: Reaching Out Into the Community: Effective Communication
This lesson reviews communication best practices. We discuss ways to improve written and oral communication. The lesson aims to provide the knowledge and tools to more effectively communicate with the public about clinical trials.
Module 4: Educating Potential Research Participants
This lesson discusses how to provide education about clinical trials. We present ways to help build interest in trials. We show how to use learning styles and culture to improve education.
Module 5: Outreach with Community Healthcare Providers
This lesson reviews how partnering with community healthcare providers can help boost minority participation in clinical trials. We discuss concerns providers may have about clinical trials. We explain the need to build trust with providers. Last, we present ways to foster provider referral.
Module 6: Effective Screening, Education, and Decision Support
This lesson discusses the steps leading to accrual in a clinical trial. Accrual means the process of enrolling patients into a trial. It also means the number of people who are in or have completed a study. We begin by explaining how using a standardized approach to screening can help with accrual. We next discuss the need for education about clinical trials before beginning the consent process. We call this “pre-consent education.” We cover the five components of pre-consent education, including how to provide decision support.
Module 7: Managing an Effective, Person-Centered Consent Process
This lesson describes how to conduct the informed consent process using a person-centered approach. We discuss the role of culture, language, health literacy, and support.
Module 8: Person-centered Retention
This lesson describes why retention of participants in clinical trials is important. We review common retention challenges that study participants may face once they agree to be a part of a clinical trial. Finally, we provide approaches to help with retention.

Good to know

Know what's good
, what to watch for
, and possible dealbreakers
Provides best practices for improving written and oral communication
Supports minority participation in clinical trials
Builds upon work of the Center for Knowledge Management at Vanderbilt University Medical Center, ArtMagic Labs, the Recruitment Innovation Center, and members of the Meharry-Vanderbilt Alliance
Emphasizes a person-centered approach throughout the recruitment and retention process
Covers key principles of community engagement and effective communication
Led by clinical research professionals from Vanderbilt University Medical Center

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Reviews summary

Recruiting marginalized communities for trials

According to learners, this course called Faster Together, Enhancing the Recruitment of Marginalized Communities in Clinical Trials is well received, getting largely positive reviews. Students say the instructors are great and that the course materials are useful. Many learners emphasize that the course is helpful for those working in clinical trials as it provides practical knowledge for recruiting minorities into trials. However, one student notes that some of the information could be considered common knowledge and that some readings had expired links. Overall, the course is highly recommended with several learners saying it is one of the best online courses they have taken.
Well-organized and engaging presentations
"This course was interesting, well designed and the presentations were engaging."
"W​onderful, very well organized course."
"I really enjoyed this course. It was packed with very useful information."
Abundance of useful resources
"I highly recommend this course. It has an unbelievable collection of resources and expands your thinking on how you can improve recruitment, enrollment, accrual and retention for clinical trials."
"Learned a fair amount. The resources are also top notch."
"Excellent Course. So well done with videos, readings. Resources I will put into use right away!"
Applicable to improving recruitment
"This is a great course that gives practical knowledge for recruiting minorities in Clinical Trials."
"The strategies and recommendations provided will be very helpful in improving identification, recruitment, and retention of individuals from minority groups and underserved communities."
"G​reat course, the detailed information and worksheets are very helpful and I have already started implementing things I have learned."
Some readings had expired links
"This course was interesting, well designed and the presentations were engaging. But this course was not as focused on minorities specifically compared to what I expected. A lot of the information given could be true across all ethnicities and is common knowledge if you work in trials. It would be useful to look more closely at the under represented ethnicities or cut out some of the 'generic' information to shorten the course. Also, a lot of the links for readings did not work, please check these regularly."
Could benefit from more minority focus
"This course was interesting, well designed and the presentations were engaging. But this course was not as focused on minorities specifically compared to what I expected. A lot of the information given could be true across all ethnicities and is common knowledge if you work in trials. It would be useful to look more closely at the under represented ethnicities or cut out some of the 'generic' information to shorten the course."

Activities

Be better prepared before your course. Deepen your understanding during and after it. Supplement your coursework and achieve mastery of the topics covered in Faster Together, Enhancing the Recruitment of Marginalized Communities in Clinical Trials with these activities:
Read "The Health Disparities Report"
Reading "The Health Disparities Report" will provide you with a comprehensive understanding of the health disparities faced by racial and ethnic minorities in the United States and the importance of increasing minority representation in clinical trials.
Show steps
  • Obtain a copy of the report from the Office of Minority Health website
  • Read through the report and take notes on the key findings
  • Consider the implications of these findings for your own work in clinical research
Review Community Outreach techniques
It is critical to have a solid foundation in recruiting racial and ethnic minorities in clinical trials to be successful in this course.
Browse courses on Community Outreach
Show steps
  • Review the course syllabus and make note of any sections that cover community outreach techniques.
  • Read any assigned readings or watch any videos on community outreach techniques.
  • Take practice quizzes or complete practice exercises on community outreach techniques.
  • Attend a workshop or webinar on community outreach techniques.
Review module content
Reviewing the course material before the course begins will help you get a head start and ensure that you have a strong foundation.
Browse courses on Clinical Trials
Show steps
  • Read the course syllabus and objectives
  • Review the key concepts for each module
  • Complete any pre-course assessments or assignments
Eight other activities
Expand to see all activities and additional details
Show all 11 activities
Join a study group or discussion forum
Participating in a study group or discussion forum can help you connect with other students and learn from their experiences.
Show steps
  • Find a study group or discussion forum that is relevant to this course.
  • Introduce yourself to the group and share your goals for the course.
  • Participate in discussions and share your thoughts and insights.
  • Ask questions and seek help from other members of the group as needed.
Volunteer with an organization that supports racial and ethnic minorities
Volunteering with an organization that supports racial and ethnic minorities will allow you to connect with potential research participants and learn about the challenges they face.
Show steps
  • Research organizations that support racial and ethnic minorities in your community.
  • Contact the organization and inquire about volunteer opportunities.
  • Attend a volunteer orientation and training.
  • Volunteer your time to support the organization's mission.
Complete practice quizzes
Completing practice quizzes will help you assess your understanding of the course material and identify areas where you need additional support.
Browse courses on Clinical Research
Show steps
  • Take the quiz associated with each module
  • Review your answers and identify areas for improvement
  • Re-take the quiz or seek additional resources to strengthen your understanding
Watch video tutorials
Watching video tutorials can help you reinforce your understanding of the course material and learn from experts in the field.
Browse courses on Clinical Trial Design
Show steps
  • Review the list of available video tutorials
  • Select a tutorial relevant to the topic you are studying
  • Watch the tutorial and take notes on key concepts
Develop a recruitment plan
Developing a recruitment plan will help you apply the principles of minority recruitment learned in the course to a practical scenario.
Show steps
  • Identify the target population for your clinical trial
  • Research and identify potential recruitment strategies
  • Develop a detailed plan outlining your recruitment approach
  • Present your plan to a mentor or instructor for feedback
Create a study guide
Creating a study guide can help you organize and synthesize the course material for easier retention and recall.
Browse courses on Clinical Trials
Show steps
  • Gather the relevant materials from the course, including notes, readings, and quizzes
  • Identify the key concepts and topics covered in each module
  • Summarize and condense the information into a concise and logical format
Lead a peer review session
Leading a peer review session will help you solidify your understanding of the course material and develop your leadership skills.
Browse courses on Clinical Research
Show steps
  • Organize a group of classmates or colleagues
  • Select a topic for the peer review session
  • Facilitate the discussion and encourage active participation from all members
Contribute to a research database
Contributing to a research database will allow you to apply your knowledge of minority recruitment to a real-world project and make a meaningful contribution to the field.
Browse courses on Clinical Trials
Show steps
  • Identify a research database or organization focused on minority health or clinical trials
  • Contact the organization and inquire about opportunities to contribute
  • Work with the organization to identify a project or dataset that aligns with your interests and skills

Career center

Learners who complete Faster Together, Enhancing the Recruitment of Marginalized Communities in Clinical Trials will develop knowledge and skills that may be useful to these careers:
Clinical Trial Manager
A Clinical Trial Manager is a crucial figure in the clinical research process, directing efforts to effectively recruit and engage research participants. This course, Faster Together, Enhancing the Recruitment of Marginalized Communities in Clinical Trials, is a valuable asset for Clinical Trial Managers seeking to enhance their skills in participant recruitment and retention. With its focus on understanding recruitment barriers, fostering community engagement, and conducting effective pre-consent education, this course directly addresses key aspects of the Clinical Trial Manager role. The modules on person-centered consent and retention further equip Clinical Trial Managers with the skills necessary for successful participant management and clinical trial outcomes.
Community Outreach Specialist
Community Outreach Specialists play a vital role in connecting clinical trials to diverse communities and promoting equitable participation. This course, Faster Together, Enhancing the Recruitment of Marginalized Communities in Clinical Trials, provides Community Outreach Specialists with a comprehensive understanding of the importance of minority representation in clinical trials and the challenges faced by marginalized communities. The course's emphasis on effective communication, community engagement, and cultural sensitivity empowers Community Outreach Specialists to build strong relationships with community stakeholders, foster trust, and increase clinical trial participation rates.
Health Communicator
Health Communicators play a critical role in disseminating health information to diverse audiences. This course, Faster Together, Enhancing the Recruitment of Marginalized Communities in Clinical Trials, provides Health Communicators with vital knowledge and skills for effectively communicating with marginalized communities about clinical trials. The course's emphasis on cultural sensitivity, clear communication, and addressing health literacy challenges empowers Health Communicators to increase awareness, build trust, and encourage participation in clinical trials among underrepresented groups.
Diversity Equity and Inclusion Manager
Diversity, Equity, and Inclusion Managers are responsible for creating and implementing strategies that enhance diversity and inclusivity within organizations. This course, Faster Together, Enhancing the Recruitment of Marginalized Communities in Clinical Trials, is a valuable resource for Diversity, Equity, and Inclusion Managers seeking to improve their understanding of the barriers faced by marginalized communities in accessing clinical research. The course's emphasis on community engagement, culturally competent communication, and effective pre-consent education empowers Diversity, Equity, and Inclusion Managers to develop programs and initiatives that promote equitable participation in clinical trials.
Patient Advocate
Patient Advocates support and empower patients throughout their healthcare journey. This course, Faster Together, Enhancing the Recruitment of Marginalized Communities in Clinical Trials, provides Patient Advocates with essential knowledge and skills to effectively advocate for equitable participation in clinical trials. The course's emphasis on understanding barriers, fostering community engagement, and providing culturally competent pre-consent education empowers Patient Advocates to build trust, address concerns, and support informed decision-making among marginalized communities.
Healthcare Provider
Healthcare Providers play a crucial role in promoting clinical trial participation. This course, Faster Together, Enhancing the Recruitment of Marginalized Communities in Clinical Trials, may be useful for Healthcare Providers seeking to improve their understanding of the importance of minority representation in clinical research and addressing the challenges faced by marginalized communities. The course's modules on community engagement, cultural sensitivity, and effective communication provide valuable insights for Healthcare Providers to foster trust and encourage participation in clinical trials among diverse patient populations.
Clinical Research Coordinator
Clinical Research Coordinators manage the day-to-day operations of clinical trials. This course, Faster Together, Enhancing the Recruitment of Marginalized Communities in Clinical Trials, may be useful for Clinical Research Coordinators seeking to improve their skills in participant recruitment and retention. The course's emphasis on understanding recruitment barriers, fostering community engagement, and conducting effective pre-consent education provides valuable insights for Clinical Research Coordinators to enhance their ability to engage with diverse communities and ensure equitable participation in clinical trials.
Research Assistant
Research Assistants support researchers in conducting clinical trials. This course, Faster Together, Enhancing the Recruitment of Marginalized Communities in Clinical Trials, may be useful for Research Assistants seeking to gain a better understanding of the importance of minority representation in clinical research and addressing the challenges faced by marginalized communities. The course's modules on effective communication, community engagement, and culturally competent consent provide valuable insights for Research Assistants to contribute to equitable recruitment and retention practices in clinical trials.
Public Health Educator
Public Health Educators promote health and well-being within communities. This course, Faster Together, Enhancing the Recruitment of Marginalized Communities in Clinical Trials, may be useful for Public Health Educators seeking to enhance their skills in community engagement and health communication. The course's emphasis on understanding barriers, fostering trust, and providing culturally sensitive information provides Public Health Educators with valuable insights for effectively engaging with diverse communities and promoting equitable participation in clinical trials.
Data Analyst
Data Analysts collect, analyze, and interpret data to inform decision-making. This course, Faster Together, Enhancing the Recruitment of Marginalized Communities in Clinical Trials, may be useful for Data Analysts seeking to gain a better understanding of the factors influencing clinical trial participation among marginalized communities. The course's focus on understanding barriers, community engagement, and equitable access provides valuable insights for Data Analysts to inform data collection and analysis practices that support diversity and inclusion in clinical research.
Health Policy Analyst
Health Policy Analysts develop and analyze health policies to improve the accessibility and quality of healthcare. This course, Faster Together, Enhancing the Recruitment of Marginalized Communities in Clinical Trials, may be useful for Health Policy Analysts seeking to gain a deeper understanding of the factors influencing clinical trial participation among marginalized communities. The course's focus on understanding barriers, community engagement, and equitable access provides valuable insights for Health Policy Analysts to inform policy decisions that promote diversity and inclusion in clinical research.
Medical Writer
Medical Writers create and edit medical and scientific documents. This course, Faster Together, Enhancing the Recruitment of Marginalized Communities in Clinical Trials, may be useful for Medical Writers seeking to enhance their skills in writing and communicating about clinical trials to diverse audiences. The course's emphasis on clear communication, addressing health literacy challenges, and cultural sensitivity provides Medical Writers with valuable insights for effectively engaging with marginalized communities and promoting equitable participation in clinical trials.
Clinical Research Associate
Clinical Research Associates assist with the design, implementation, and management of clinical trials. This course, Faster Together, Enhancing the Recruitment of Marginalized Communities in Clinical Trials, may be useful for Clinical Research Associates seeking to enhance their skills in participant recruitment and retention. The course's focus on understanding barriers, fostering community engagement, and conducting effective pre-consent education provides valuable insights for Clinical Research Associates to contribute to equitable recruitment and retention practices in clinical trials.
Biostatistician
Biostatisticians apply statistical methods to analyze and interpret medical and health data. This course, Faster Together, Enhancing the Recruitment of Marginalized Communities in Clinical Trials, may be useful for Biostatisticians seeking to gain a better understanding of the factors influencing clinical trial participation among marginalized communities. The course's focus on understanding barriers, community engagement, and equitable access provides valuable insights for Biostatisticians to inform statistical analysis and interpretation practices that support diversity and inclusion in clinical research.
Epidemiologist
Epidemiologists investigate the distribution and causes of health-related states and events in populations. This course, Faster Together, Enhancing the Recruitment of Marginalized Communities in Clinical Trials, may be useful for Epidemiologists seeking to gain a better understanding of the factors influencing clinical trial participation among marginalized communities. The course's focus on understanding barriers, community engagement, and equitable access provides valuable insights for Epidemiologists to inform research design and analysis practices that support diversity and inclusion in clinical research.

Reading list

We've selected nine books that we think will supplement your learning. Use these to develop background knowledge, enrich your coursework, and gain a deeper understanding of the topics covered in Faster Together, Enhancing the Recruitment of Marginalized Communities in Clinical Trials.
Provides practical guidance on how to engage communities in clinical research, including strategies for building trust and partnerships.
Provides a comprehensive overview of the clinical trial process, from design to implementation and analysis.
Provides a comprehensive overview of statistical methods used in clinical trials, and is more suitable for a technical audience.
Comprehensive guide to the ethical conduct of clinical research, including the principles of informed consent and the protection of human subjects.
Provides a comprehensive overview of community-based participatory research, a collaborative approach to research that involves community members as equal partners.

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