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Claudia Bustamante Troncoso and Claudia Alcayaga Rojas

La epilepsia es una enfermedad crónica, y que en términos clínicos ha sido muy estudiada, sin embargo, las mayores complicaciones que enfrentan las personas que la presentan están fuertemente vinculadas a la percepción del entorno, a mitos y creencias que dificultan sus oportunidades de participación.

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La epilepsia es una enfermedad crónica, y que en términos clínicos ha sido muy estudiada, sin embargo, las mayores complicaciones que enfrentan las personas que la presentan están fuertemente vinculadas a la percepción del entorno, a mitos y creencias que dificultan sus oportunidades de participación.

El propósito de este MOOC es generar un espacio de diálogo a través del abordaje de temáticas claves para comprender y desmitificar la epilepsia con tal de ampliar la mirada y generar espacios de inclusión social.

El enfoque que presentamos es interdisciplinario permitiendo un abordaje que precisa su alcance; definiéndola y proponiendo una participación activa sobre, por ejemplo, como enfrentar una crisis y cuál es la manera correcta de ayudar y cuál es el importante papel que juegan el autocuidado y automanejo con tal de advertir aquellos factores de riesgo que pueden precipitar una crisis y aquellos que actúan como factores protectores. La intención centrales es poder aprender, aconsejar y dar el apoyo necesario a las familias, entendiéndolas como actores relevantes en este proceso.

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What's inside

Syllabus

Módulo 1: Crisis epiléptica y ¿Qué es la epilepsia?
Este módulo aborda la definición de crisis epilépticas y su clasificación; señala cuáles son las principales indicaciones para un manejo seguro de las crisis; los mitos y errores clínicos más frecuentes y de qué forma se realiza el diagnóstico de esta patología.
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Módulo 2: ¿Cómo es el tratamiento de la epilepsia? Epilepsias en la adultez
Este módulo aborda cómo es el tratamiento de la epilepsia desde una mirada multidisciplinaria y cómo es el pronóstico de esta patología; considerando, además, la importancia del automanejo y autocuidado para el éxito del tratamiento. Se describe cómo es la epilepsia en la etapa adulta y las principales comorbilidades que afectan a estos pacientes, con un especial énfasis en la mujer con epilepsia y su vida reproductiva.
Módulo 3: Epilepsias en la niñez y adolescencia; y apoyo en el entorno escolar
Este módulo aborda las principales características de la epilepsia y sus comorbilidades más frecuentes en la niñez y adolescencia; además de enfatizar la relevancia que adquiere el apoyo en entorno escolar y el fomento de habilidades de automanejo en los adolescentes y jóvenes con epilepsia.
Módulo 4: Promover un entorno inclusivo en Epilepsia
Este módulo aborda el proceso de estigmatización que enfrentan las personas con epilepsia y su impacto a nivel psicosocial, analizando la importancia de promover estrategias para un entorno inclusivo y participativo. Además, aborda un aspecto clave referido a la figura del cuidador; entendida como aquella persona que brinda en forma permanente cuidados de salud y apoyo emocional a un ser querido.

Good to know

Know what's good
, what to watch for
, and possible dealbreakers
Realizado por especialistas en el área de salud, aborda síntomas, tratamientos y el rol de los familiares
Aborda el tema con un enfoque interdisciplinario, ofreciendo una visión amplia y completa
Tiene como objetivo desmitificar la epilepsia y ampliar la mirada sobre esta afección
Incluye módulos específicos sobre epilepsia en la niñez, adolescencia y adultez
Enfatiza la importancia del automanejo y autocuidado para el éxito del tratamiento

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Reviews summary

Highly recommended epilepsy education

This course on epilepsy management and social inclusion is highly recommended by students. Reviewers found the materials to be clear and informative and greatly appreciated the course's emphasis on reducing the stigma associated with epilepsy and promoting inclusivity. Many reviewers mentioned that the course helped them to better understand the disease and how to support individuals with epilepsy.
The materials are clear and informative.
"Excelente Educación Ofrecida!"
"Un curso muy útil, me abrió la mente! "
"Excelente curso, fue una experiencia muy grata "
"me encanto el curso realmente, es muy completo."
Reviewers consistently describe the course as excellent.
"GOOD"
"excelente"
"Muy Buen Curso"
"Excelente material."
The course effectively promotes the inclusion of individuals with epilepsy.
"Mucha informacion que permite al estudiante que toma dicho curso poder entender y ayudar a personas con estas crisis epilepticas."
The course effectively challenges negative stereotypes associated with epilepsy.
"E​xelente curso, ojala pueda llegar a mas personas.S​aludos!!!"
"Tremendo curso , me encantó muy didáctico, los profesionales tremendo, muchas gracias!"
"me gusto mucho, de el ppude aprender diferentes formas en que puedo ayudar a la sociedad a ser mas inclusiva"
"He aprendido más acerca de mi enfermedad y de el entorno o de ver cómo las personas piensan sobre dicha enfermedad "

Activities

Be better prepared before your course. Deepen your understanding during and after it. Supplement your coursework and achieve mastery of the topics covered in Manejo de Crisis Epilépticas y Promoción de la Inclusión Social with these activities:
Refine knowledge of treating seizures
Reinforces the skills necessary to treat seizures properly.
Browse courses on Epilepsy
Show steps
  • Review the current recommended treatment algorithms for treating different seizure types
Volunteer at an organization that supports people with epilepsy
Provides hands-on experience and allows you to make a meaningful contribution to the epilepsy community.
Browse courses on Epilepsy
Show steps
  • Identify organizations in your area that provide support to people with epilepsy
  • Inquire about volunteer opportunities and choose a role that aligns with your interests
  • Fulfill your volunteer responsibilities with dedication and compassion
Develop a care plan for a patient with epilepsy
Develops a plan to provide holistic care for patients with epilepsy.
Show steps
  • Gather information about the patient's medical history, current symptoms, and lifestyle
  • Identify the patient's individual needs and goals
  • Develop a plan of care that includes medication management, lifestyle modifications, and support services
  • Educate the patient and their family about epilepsy and its management
Three other activities
Expand to see all activities and additional details
Show all six activities
Create a collection of resources on epilepsy
Provides a central location for accessing high-quality information on epilepsy.
Browse courses on Epilepsy
Show steps
  • Gather resources from reputable organizations, such as the Epilepsy Foundation and the American Academy of Neurology
  • Organize the resources into different categories, such as treatment options, support groups, and patient education
  • Make the compilation easily accessible to patients, families, and healthcare providers
Participate in a support group for people with epilepsy
Fosters a sense of community and provides an opportunity to learn from others with similar experiences.
Browse courses on Epilepsy
Show steps
  • Locate a support group in your area or online
  • Attend meetings regularly and actively participate in discussions
  • Share your experiences and offer support to others
Explore advanced topics in epilepsy management
Provides exposure to cutting-edge research and best practices.
Show steps
  • Identify reputable sources of information on advanced epilepsy management
  • Review published research articles, attend webinars, and participate in online discussions
  • Consult with experts in the field to gain insights and practical tips

Career center

Learners who complete Manejo de Crisis Epilépticas y Promoción de la Inclusión Social will develop knowledge and skills that may be useful to these careers:
Pediatrician
Pediatricians are medical doctors who specialize in the care of infants, children, and adolescents. They are responsible for providing comprehensive care to children, including the diagnosis and treatment of epilepsy. This course may be useful for a Pediatrician because it provides an overview of the causes, symptoms, and treatment of epilepsy in children and adolescents, as well as information on how to provide support to patients and their families.
Neurologist
Neurologists are medical doctors who specialize in the diagnosis and treatment of diseases of the nervous system, including epilepsy. They are responsible for ordering and interpreting tests, developing and implementing treatment plans, and providing ongoing care to patients with epilepsy. This course may be useful for a Neurologist because it provides an overview of the causes, symptoms, and treatment of epilepsy, as well as information on how to provide support to patients and their families.
Epilepsy Nurse
Epilepsy Nurses are an important part of a healthcare team specializing in the care of patients with epilepsy. They are responsible for providing direct patient care, developing and implementing treatment plans, and educating patients and their families about epilepsy. This course may be useful for an Epilepsy Nurse because it provides an overview of the causes, symptoms, and treatment of epilepsy, as well as information on how to provide support to patients and their families.
Psychologist
Psychologists provide counseling and therapy to people with epilepsy who are struggling with the emotional and psychological challenges of the condition. They may also be involved in developing and implementing programs to promote mental health and well-being for people with epilepsy. This course may be useful for a Psychologist because it provides an overview of the causes, symptoms, and treatment of epilepsy, as well as information on the psychosocial impact of epilepsy and how to provide support to patients and their families.
Special Education Teacher
Special Education Teachers provide instruction and support to students with epilepsy who have learning disabilities. They may also be involved in developing and implementing programs to promote academic success and social inclusion for students with epilepsy. This course may be useful for a Special Education Teacher because it provides an overview of the causes, symptoms, and treatment of epilepsy, as well as information on the psychosocial impact of epilepsy and how to provide support to students and their families.
Speech-Language Pathologist
Speech-Language Pathologists help people with epilepsy who have difficulty with communication and swallowing. They may also be involved in developing and implementing programs to promote communication and swallowing skills for people with epilepsy. This course may be useful for a Speech-Language Pathologist because it provides an overview of the causes, symptoms, and treatment of epilepsy, as well as information on the psychosocial impact of epilepsy and how to provide support to patients and their families.
Case Manager
Case Managers coordinate and manage the care of people with epilepsy. They may also be involved in developing and implementing programs to promote access to care and support services for people with epilepsy. This course may be useful for a Case Manager because it provides an overview of the causes, symptoms, and treatment of epilepsy, as well as information on the psychosocial impact of epilepsy and how to provide support to patients and their families.
Physical Therapist
Physical Therapists help people with epilepsy to improve their mobility and function. They may also be involved in developing and implementing programs to promote physical activity and safety for people with epilepsy. This course may be useful for a Physical Therapist because it provides an overview of the causes, symptoms, and treatment of epilepsy, as well as information on the psychosocial impact of epilepsy and how to provide support to patients and their families.
Rehabilitation Counselor
Rehabilitation Counselors help people with epilepsy to find and maintain employment, housing, and other services they need to live independently. They may also be involved in developing and implementing programs to promote employment and community integration for people with epilepsy. This course may be useful for a Rehabilitation Counselor because it provides an overview of the causes, symptoms, and treatment of epilepsy, as well as information on the psychosocial impact of epilepsy and how to provide support to patients and their families.
Community Health Worker
Community Health Workers provide health education and support to people in their communities. They may also be involved in developing and implementing programs to promote health and well-being for people with epilepsy. This course may be useful for a Community Health Worker because it provides an overview of the causes, symptoms, and treatment of epilepsy, as well as information on the psychosocial impact of epilepsy and how to provide support to patients and their families.
School Nurse
School Nurses provide health care to students in schools. They may also be involved in developing and implementing programs to promote health and safety for students with epilepsy. This course may be useful for a School Nurse because it provides an overview of the causes, symptoms, and treatment of epilepsy, as well as information on how to provide support to students and their families.
Pharmacist
Pharmacists are responsible for dispensing medications and providing information about their use. They may also be involved in the development and implementation of treatment plans for patients with epilepsy. This course may be useful for a Pharmacist because it provides an overview of the causes, symptoms, and treatment of epilepsy, as well as information on the medications used to treat epilepsy.
Occupational Therapist
Occupational Therapists help people with epilepsy to develop the skills they need to live independently and participate in their communities. They may also be involved in developing and implementing programs to promote safety and independence for people with epilepsy. This course may be useful for an Occupational Therapist because it provides an overview of the causes, symptoms, and treatment of epilepsy, as well as information on the psychosocial impact of epilepsy and how to provide support to patients and their families.
Social Worker
Social Workers provide support and counseling to patients and their families dealing with the challenges of epilepsy. They may also be involved in developing and implementing community programs to support people with epilepsy. This course may be useful for a Social Worker because it provides an overview of the causes, symptoms, and treatment of epilepsy, as well as information on the psychosocial impact of epilepsy and how to provide support to patients and their families.

Reading list

We've selected eight books that we think will supplement your learning. Use these to develop background knowledge, enrich your coursework, and gain a deeper understanding of the topics covered in Manejo de Crisis Epilépticas y Promoción de la Inclusión Social.
This classic textbook provides a comprehensive overview of epilepsy, covering the latest research on diagnosis, treatment, and management. It is an essential resource for healthcare professionals who want to stay up-to-date on the latest advances in epilepsy care.
This practical guide to epilepsy provides a comprehensive overview of the diagnosis, management, and treatment of epilepsy. It is an essential resource for neurologists, epileptologists, and other healthcare professionals involved in the care of patients with epilepsy.
This easy-to-understand guide provides patients and families with the information they need to understand epilepsy and manage its symptoms. It covers a wide range of topics, including the different types of seizures, treatment options, and lifestyle changes that can help to reduce seizures.
Save
This easy-to-understand guide provides patients and families with the information they need to understand epilepsy and manage its symptoms. It covers a wide range of topics, including the different types of seizures, treatment options, and lifestyle changes that can help to reduce seizures.
Provides a comprehensive overview of epilepsy for seniors. It covers all aspects of epilepsy, from basic science to clinical management. It is an essential resource for anyone who wants to learn more about epilepsy.
Provides a personal account of living with epilepsy. It valuable resource for anyone who wants to learn more about the challenges and triumphs of living with epilepsy.

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