CERTaIN: Patient-Centered Outcomes Research from edX

In this course, you will learn about the characteristics of CER/PCOR, compare and contrast CER/PCOR studies and randomized controlled trials, and you will hear how PCOR researchers have overcome a variety of barriers to ensure patient-centered care.

This course includes the following 11 lectures:

Engaging Patients and Stakeholders in Patient-Centered Outcomes Research
Principles of Community-Based Participatory Research
Shared Decision Making in Cancer: Models and Methods
Patient Decision Support Tools in Cancer
An Overview of Patient-Reported Outcomes in Cancer
Designing Surveys: Asking Questions with a Purpose
Qualitative Methods of Research
Dissemination and Implementation Research in PCOR: Translating Knowledge Into Practice
The Role of Health Literacy in Patient-Centered Outcomes Research
Cognitive Impairment and Participation in Research
Behavioral Interventions in Patient-Centered Outcomes Research

This course is intended for anyone interested in comparative effectiveness research (CER) and patient-centered outcomes research (PCOR) methods.

This course is supported by grant number R25HS023214 from the Agency for Healthcare Research and Quality.

What's inside

Learning objectives

Describe methods used in cer/pcor studies

Differentiate between cer/pcor studies and randomized controlled trials

Describe methods used in cer/pcor studies
Differentiate between cer/pcor studies and randomized controlled trials

Syllabus

Engaging Patients and Stakeholders in Patient-Centered Outcomes Research (PCOR)

Patient and stakeholder engagement in research, principles and benefits

Tips for engagement

Principles of Community-Based Participatory Research (CBPR)

CBPR definition, principles, benefits and challenges

CBPR versus traditional academic research

Shared Decision Making (SDM) in Cancer

SDM models, definitions and myths

SDM intervention effectiveness

Patient Decision Support Tools in Cancer

Patient decision support technologiesand clinical guidelines

Informed decision making, shared decision making and patient decision support technologies

International Patient Decision Aid Standards collaboration

An Overview of Patient-Reported Outcomes (PROs) in Cancer

How PROs differ from other outcomes

Choosing PROs

Study design and PRO components

Designing Surveys: Asking Questions with a Purpose

Survey purpose and types

Survey samples, question design and format

Reliability, validity and sources of error

Qualitative Methods of Research

Qualitative and quantitative data comparison

Mixed methods

Thematic content analysis

Dissemination and Implementation Research in PCOR: Translating Knowledge Into Practice

Common dissemination and implementation research questions and outcomes

Path of research to practice

Diffusion of innovation and the consolidated framework for implementation research

The Role of Health Literacy inPCOR

Health literacy and its importance and impact on health status outcomes

Methods of assessing health literacy in PCOR

Cognitive Impairment and Participation in Research

Capacity to consent to participation in research

Ethical involvement of cognitively impaired subjects

Involvement of surrogate decision-makers for impaired subjects

Behavioral Interventions inPCOR

Research partnerships in behavioral interventions

Fidelity and adoption

Good to know

Know what's good

, what to watch for

, and possible dealbreakers

Covers core topics in comparative effectiveness research (CER) and patient-centered outcomes research (PCOR), providing a solid foundation for learners

Provides valuable insights into the distinct characteristics of CER/PCOR studies and how they compare to randomized controlled trials, offering a comprehensive understanding

Helps learners appreciate the role of patients and stakeholders in driving patient-centered care, fostering a more collaborative and informed approach

Offers practical guidance on overcoming barriers to patient-centered care through innovative research methods and strategies, empowering learners to make a tangible impact in healthcare

Led by esteemed instructors, Maria E. Suarez-Almazor, MD, PhD, and Robert J. Volk, PhD, who bring a wealth of expertise and experience in the field, ensuring high-quality instruction

Engages learners in interactive discussions and hands-on activities, enabling them to actively participate in the learning process and apply their knowledge to real-world scenarios

Reviews summary

Enlightening patient-centered outcomes research course

Learners say this patient-centered outcomes research course is enlightening and empowering. They strongly recommend it to all health professionals.

Students find this course to be an excellent resource.

"It was very insightful."

"I strongly recommends all health professionals to enroll into this course."

Activities

Be better prepared before your course. Deepen your understanding during and after it. Supplement your coursework and achieve mastery of the topics covered in CERTaIN: Patient-Centered Outcomes Research with these activities:

Review reading and summarizing scientific literature

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Reviewing how to quickly read and summarize important scientific literature will aid in learning from research articles faster.

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Identify key sections of a research paper: abstract, introduction, methods, results, discussion
Practice reading and summarizing 2-3 research papers in the field of CER/PCOR

Review the basics of patient-centered outcomes research PCOR

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Review the basics of patient-centered outcomes research PCOR to strengthen your foundational understanding and prepare for success in this course.

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Review the course syllabus and identify key concepts related to PCOR.
Read introductory articles or book chapters on PCOR to gain a general understanding of the field.

Review basic statistics

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Reviewing basic statistics will help you refresh your knowledge of the fundamental concepts used in CER/PCOR research.

Browse courses on Statistics

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Review your notes from a previous statistics course.
Take a practice quiz on basic statistics.

Eight other activities

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Show all 11 activities

Follow a tutorial on qualitative research methods

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Following a tutorial on qualitative research methods will introduce you to the basics of this important research approach.

Browse courses on Qualitative Research Methods

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Find a tutorial on qualitative research methods that interests you.
Follow the steps in the tutorial to learn about different qualitative research methods.
Apply what you have learned to a research project of your own.

Join a study group with other CER/PCOR students

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Joining a study group with other CER/PCOR students will provide you with an opportunity to discuss the course material and to learn from your peers.

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Find other students who are taking the same CER/PCOR course.
Form a study group and meet regularly to discuss the course material.

Review Principles of Health Care Ethics

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Reviewing Principles of Health Care Ethics will help you build a solid foundation in the ethical principles and theories used in health care decision-making.

View A History and Theory of Informed Consent on Amazon

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Read the book thoroughly and make note of key points.
Participate in online discussions or forums to discuss ethical case studies.
Complete the review questions at the end of each chapter.

Design a mock patient decision support tool

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Create a mock patient decision support tool to apply the principles of shared decision making and enhance your understanding of this important aspect of PCOR.

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Identify a specific health condition or treatment decision for which you want to design the tool.
Research and gather information about the available treatment options and their potential benefits and risks.
Develop a prototype of the tool, including visual elements, text, and interactive features.
Get feedback from potential users, such as patients, caregivers, or healthcare professionals.

Practice designing surveys for PCOR studies

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Practicing designing surveys for PCOR studies will help you develop the skills necessary to collect high-quality data.

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Use an online survey design tool to create a survey for a specific PCOR question.
Get feedback on your survey from peers or colleagues.
Revise your survey based on feedback.

Attend a workshop on patient-centered outcomes research (PCOR)

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Attending a workshop on PCOR will provide you with an opportunity to learn from experts in the field and to network with other researchers.

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Find a PCOR workshop that interests you.
Register for the workshop.
Attend the workshop and participate in the discussions.
Follow up with the workshop organizers or speakers after the event.

Create a presentation on a patient-centered outcome research (PCOR) study

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Creating a presentation on a PCOR study will help you develop a deeper understanding of the methods and applications of PCOR.

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Choose a PCOR study that interests you.
Review the study design, methods, and results.
Create a PowerPoint or Google Slides presentation that summarizes the study.
Present your findings to your classmates or colleagues.

Mentor a peer in a CER/PCOR course

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Mentoring a peer in a CER/PCOR course will allow you to share your knowledge and to help others to succeed in the course.

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Identify a peer who is struggling in the CER/PCOR course.
Offer to mentor them and provide them with support.
Meet with your mentee regularly to discuss the course material and to provide guidance.

Career center

Learners who complete CERTaIN: Patient-Centered Outcomes Research will develop knowledge and skills that may be useful to these careers:

Data Analyst

A Data Analyst collects, analyzes, and interprets data to help organizations make informed decisions. This course may be useful in providing you with a foundation in patient-centered outcomes research.

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Physician Assistant

A Physician Assistant provides medical care under the supervision of a physician. This course may be useful in providing you with a foundation in patient-centered outcomes research.

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Health Educator

A Health Educator develops and implements educational programs to promote health and prevent disease. This course may be useful in providing you with a foundation in patient-centered outcomes research.

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Epidemiologist

An Epidemiologist investigates the distribution and patterns of health and disease in populations. This course may be useful in providing you with a foundation in patient-centered outcomes research.

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Biostatistician

A Biostatistician designs and analyzes studies to answer questions about the effectiveness of medical treatments and procedures. This course may be useful in providing you with a foundation in patient-centered outcomes research.

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Market Researcher

A Market Researcher conducts research to understand the needs and wants of consumers. This course may be useful in providing you with a foundation in patient-centered outcomes research.

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Research Scientist

A Research Scientist conducts research to advance scientific knowledge. This course may be useful in providing you with a foundation in patient-centered outcomes research.

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Pharmacist

A Pharmacist dispenses medications and provides advice on their use. This course may be useful in providing you with a foundation in patient-centered outcomes research.

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Health Policy Analyst

A Health Policy Analyst researches and analyzes health policy issues to inform decision-making. This course may be useful in providing you with a foundation in patient-centered outcomes research.

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Medical Writer

A Medical Writer creates written materials about medical topics for a variety of audiences. This course may be useful in providing you with a foundation in patient-centered outcomes research.

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Clinical Research Associate

A Clinical Research Associate manages clinical trials, ensuring that they are conducted according to Good Clinical Practice (GCP) guidelines. This course may be useful in providing you with a foundation in patient-centered outcomes research.

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Public Health Educator

A Public Health Educator develops and implements educational programs to promote health and prevent disease. This course may be useful in providing you with a foundation in patient-centered outcomes research.

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Patient Advocate

A Patient Advocate represents the interests of patients and their families. This course may be useful in providing you with a foundation in patient-centered outcomes research.

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Quality Improvement Specialist

A Quality Improvement Specialist works to improve the quality of healthcare services. This course may be useful in providing you with a foundation in patient-centered outcomes research.

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Nurse Researcher

A Nurse Researcher conducts research to improve patient care. This course may be useful in providing you with a foundation in patient-centered outcomes research.

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